Meet Jackson.

When Jackson was six years old, he was as active as any boy his age could be. A competitive swimmer, who also enjoyed playing in the front yard with his sister, he was always happy and full of energy. When Jackson was just entering the first grade, he began to have difficulty walking, writing, and day-to-day tasks -- soon after he was diagnosed with metachromatic leukodystrophy, a rare genetic disease that makes it difficult to move and speak. Just two months later, Jackson underwent a bone marrow transplant in Pittsburgh thanks to his sister who was a match.

While the success of the bone marrow transplant slowly began to show, Jackson’s health slowly continued to decline. Unable to sit up on his own, and speak, that has not stopped Jackson from doing the things he loves.

When Jackson was eight years old, he was referred to Coastal Kids Home Care. Five years later he continues to benefit from comprehensive palliative care services and daily shift nursing. Jackson receives excellent care from his nurse Janelle, and benefits from weekly massage therapy, and monthly social work visits. With the help of his family and nurse, Jackson continues to enjoy being in the pool and watching movies; his favorite is Moana. Jackson’s mom says, “Coastal Kids has given us the ability to still live life and enjoy Jack but gives us a break from the care he needs.”

“Coastal Kids has given us the ability to still live life and enjoy Jack but gives us a break from the care he needs.” –Jackson’s Mom