Meet Isabella.

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Meet Isabella.

Greeting life with a smile while under close watch of Coastal Kids clinical team.

Born: 2009
Diagnosis: Wolf-Hirschhorn Syndrome
Services Used: Physical Therapy and Respite Nursing
Challenge: To assist in 24/7 monitoring of her seizures and ensure her growth and development are on track.
Solution: Isabella began services with Coastal Kids when she came home from the hospital at age 4 months old. Now nine years old, she receives Physical Therapy to help with strength, balance and coordination. Her family also utilizes Respite Nursing to monitor her unpredictable seizures. Coastal Kids nurses keep lines of communication open among her specialty physicians, family, and caregivers.
Results: Today, thanks to her Coastal Kids team Isabella can walk independently and her seizures are kept under close watch. She is a huge Brandon Crawford fan and watches as many Giants games as she can.

“We named her Isabella because it means ‘God’s Promise’. She is our miracle” -Edgardo

Meet Abigail.

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Meet Abigail.

Abigail was born premature with difficulty breathing. With the help of her team at CKHC, Abigail is growing stronger every day.

Born: 2016
Diagnosis: Preterm Birth
Services Used: Nursing, Physical Therapy and Palliative Care
Challenge: After being born at 1lb 10 oz wee Abigail's early months in the neonatal intensive care unit at UCSF were complicated by acute respiratory failure and feeding difficulties.
Solution Doctors placed a g-tube to support nutrition and weight gain and a tracheostomy to protect her fragile airway. At home, Coastal Kids helps Abigail's mom navigate her complex care.
Results Abby just celebrated her second birthday and is growing every day. Her mom relies on the comprehensive support of her Palliative Care team to help monitor her nutrition and growth. She also relies on the team to coordinate care with specialty physicians

“I don’t know what I would do without you guys” -Nora (Abby’s mom)

Meet Christian and Jeremiah.

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Meet Christian and Jeremiah.

Building confidence to manage their chronic condition at home with help from CKHC.

Born: 2007 and 2009
Diagnosis: Hemophilia A
Services Used: Used Nursing
Challenge: Managing hemophilia for two active boys.
Solution Christian has been on service for three years, followed shortly by Jeremiah. He receives Factor VIII transfusions that replace the missing protein in his blood to assist with clotting and make daily activities safer.
Results Today, Christian receives Factor VIII transfusions 3-4 times each week from his mom and is beginning to learn how to do them on his own. With the help of his nurse, Christian is teaching his little brother Jeremiah how to manage his hemophilia too. With their condition under control, they can just be regular kids.

“Coastal Kids has a family vibe. It’s not just about the services its about the relationships they build. They are an extra support system that takes a lot of stress off our shoulders” - Christian and Selena